Phoenixboi Phoenixboi

Living with HIV

Living with HIV

Blogging frommy heart

Im going to take a little twist on my blogging.

It's taken courage to write about this on here. At first I thought I shouldnt bring it up. But it is a part of me, and what has made me who I am today, especially how I view the world. So here it goes...

Ive been living with HIV (Human Immunodificency Virus) since I was 18, I am now 31. In that time I have seen people die around me, people reject me, people learn from me and people love me in ways I never dreamed imaginable.

To me living with HIV is a part of my everyday existence. You could say I've learnt to live with it. There isn't anything glamerous about it. It's life changing and it never goes away.

At the moment I am well. Really well. I have around 400 t cells, my viral load is around 230. It hasnt always been this good. The road has been rough along the way. I currently am on a regieme of medications called Anti retrovirals. I take them when I wake up and I take them when I go to bed. This ensures my constant reminder that i am living with this Virus. I can never forget it.

The Virus comes up everytime I have sex. Everytime I feel ill. Everytime I meet someone and form a relationship with them. It comes up everytime I bleed. The virus is like another entity living within my body with its own life. I am its host. I have learnt to accept its rythymn and flow with it, not to disrupt it or it kicks up a fuss like a baby.

At times I hate it. At times I feel like a leper. At times I feel like death. But with all this there are times when living with this virus has taught me alot about life.

It's a very personal issue for me. But hopefully I can help others going through it that read this, and hopefully I can help others who dont have to understand more about it. Maybe it will help save others from going through the same experience. I dont know what it will do but I know that most importantly I can have an outlet to express how I feel, and maybe it will help me heal in some way.

I first come into contact with this virus at the age of 18. I met this guy and had sex with him. Loads of sex. All of it was unprotected. At that time I didnt think about HIV, i was invincible, in my prime. Besides he was a counsellor for people living with HIV. If he had it he would have told me and he would have protected me from it. Unfortunately that wasnt the case. He had it. He didnt care. He didnt say anything to me. So I got sick.

I vividly remember going to the doctors with lymph glands in my neck swollen wondering why and the doctor asking me if I wanted a HIV test. I didnt think anything of it. Of course I didnt have it. Two weeks later the tests came back inconclusive. I had to have another test, this time it came back positive. He informed me that I had at most 6 months good health left, that I was going to die and that I had to inform my family and people I had come into sexual contact with.

I was 18. I hadnt come out to any of my family. I had a vision of my future. I was no longer invincible.

I confronted the guy. It didnt seem to bother him too much. I let out my anger. Why didnt he tell me? Why did he let this happen to me? Why did I let this happen to myself?. What was going to happen to me now?.

First thing I did was try and absorb as much information as possible on the virus. What it meant to have it, what my prospects were, what I could do and could no longer do. There wasnt much information back then. I was going to die. I had to get my life in order. I had to tell the people I loved, and I had to prepare for death.

Since that time I have seen my doctor every month. I have had that many blood tests that my veins are scarred with the needles. I have come to know more about my body and my immune system. I have taken toxic drugs to help fight it. I have taken herbs and potions to help my body. I have worked with people living with HIV, set up support groups, experimented with different methods of healing and talked with alot of people.

Thankfully I no longer am preparing for imminent death. Forteen years have passed and I am still here. I am healthy. I have the support and love from the majority of my family and friends. For this I am most thankful.

No longer do I have a vision of my future. No longer do I feel invincible. No longer do I see the world through the same eyes. I am still alive. Everyday counts. Everyday I learn something new. Everyday something changes.

As im about to post this..it has just started to rain. Only a little.






13,328 views 75 replies
Reply #51 Top
Phoenixboi,

I've come quite late to reading this post. Ignoring the distasteful, and just plain inappropiate comments that have been left, I think that it is so brave of you to be so honest and open about this with us. I have friends with HIV who would love to have your courage, but are still crippled by their fear of the disease. I'm going to pass this link onto them and maybe some of your bravery will rub off on them! Not that they aren't brave, they are just really, really scared and surrounded by a lot of people who are even more scared of them. Bastard society. Sending you a big hug, and thanking you so much for this beautiful and moving article.

Suz xx
Reply #52 Top
Hey Floozie!

Thanks for reading and for your comment. It is really scary, it really is unpredictable. The only simple advice I can give is to live each day as it comes. To live your dreams as everyday is a new day and new adventures are around the corner. Find your support network and build it up. trust yourself and your intuition and you never know what can happen.

Please do pass this on. And if I can help more in anyway please let me know.

Cheers!
Reply #53 Top

trust yourself and your intuition and you never know what can happen.


PB~I totally love this quote. Glad more folks are taking a peek at this article~it really is one of the best ones on here I've seen so far. Blog on big time!


~MP


P.S. Got your email~glad everything is cool with you now, etc. Thanks!

Reply #54 Top
Hi! I am in admiration of your strength and courage to share your story! It's fantastic to see such a positive outlook on life! I really like how you explain your experience with living with HIV. It's easy to read about what happens with the body and HIV, to know about all the effects on the immune system, but I have not ever really come accross an honest expression of how a person living with HIV feels. In research articles they are usually "censored" in that it reads like the person is telling the researcher what they want to hear as a-posed to what the person really feels. You're FANTASTIC! *hug*
Reply #55 Top
Hey there Keo Lin!
Thanks so much for your comments! They are very inspiring! Sorry for the late response I have been away from the computer doing some stuff getting ready for my new job.
I try and make my experience told on here as real as it is for me, thereby other people can understand me and try and get a feel of what Im going through and maybe it might help as well.
Thanks again for your comments and drop by again soon!
Reply #56 Top
Powerful stuff. I can't beging to imagine what you have faced, but I respect your courage and faith in life. Stay strong!
Reply #57 Top
Phoenixboi...permit me to give you a huge hug.

My mother died of AIDS in 89. She got it from her second husband. And I can tell you that people were not so enlightened then. Especially in the small town where she died.
I learned more about AIDS after she died then I ever thought I wanted to know from the nurses and my own research.
I encountered people who were afraid to come near me due to her death.
It's changed...slowly. Because of brave people like you.

Hang in there, Sunshine. I admire you.
Ali
The Misfit Chick
Reply #58 Top
Stay strong


Thanks CS guy! It is amazing the strength that I have gained with this. And hopefully I can share it with other people.
Reply #59 Top
permit me to give you a huge hug.


Hugs right back at ya Misfit Chick! You know what im going through and what happens. For the memory of all those that have gone with this disease and for the insight and help it is giving me thats why im writing about it. The stigma this disease causes in the community is amazing and through writing I am coming out of my shell with it. Thanks for your comment and keep blogging.
Reply #60 Top
wow... that's all I can say. I have never met anyone with HIV and you really have made me think about all this stuff. It didn't really hit me that there are actually people who live every day with this disease. You'll be in my prayers. *hugs you* By the way, thanks for writing about HIV... You have opened my eyes to be careful and to realize that i'm not invincible either. Thanks.

Ashlee
Reply #61 Top
It didn't really hit me that there are actually people who live every day with this disease.


Hey Ashlee yeah last year alone I think there were 5 Million new cases world wide.



Thankyou and you will be in mine.

You have opened my eyes to be careful and to realize that i'm not invincible either


I remember hearing about HIV when I was your age and didnt think much about it. It was something that I never came across with people and really didnt think it could happen to me. So yeah be safe. There isnt anything written on peoples forehead saying they are HIV.. you cant tell by looking, and it is something that is in every community.

TAke care ok! And happy Birthday again.
Reply #62 Top
Hi Phoenixboi,

I've just come and read this after reading your other post and realising that I didn't know much about you. I haven't read the other comments as there are 61 before mine! My prayers go to you, and I think you must bring lots of joy to others in your life. I can't imagine living with a virus like you do, and I am in awe of you and all the others that do it every day. I complain when I get a cold!

Thank you for sharing this,

Aria
Reply #63 Top
've just come and read this after reading your other post and realising that I didn't know much about you.


Hi there Ariadne (what a beautiful name!) Thanks for taking the time to read this article, Hopefully I have helped you to understand a little more about this virus.

I have to admit I hadnt read your blogs until now, I like what Ive read so far.

My prayers go to you, and I think you must bring lots of joy to others in your life.


Thank you!
Reply #64 Top
I have severe anxiety when my life seems uncertain or when I have to change jobs...and you had to live with the knowledge of your impending death??!!!

I applaud you for every day that you wake up and live your life
Reply #65 Top
Hey wuxiaomao

I applaud you for every day that you wake up and live your life


What else can I do? The way I see things now is that it is really important to live life everyday as it comes, not taking anything for granted and experiencing everything as mich as it can give me. In the process if I can help other people then that is a bonus as well.
and you had to live with the knowledge of your impending death??!!!


I guess we are all going to die sometime. I like looking at things the way the Buddha taught, that death is inevitable, it could be in the next second or next 100 yrs, but it is inevitable. Life shouldnt be wasted.

Thanks for dropping by!
Reply #66 Top


Thanks for posting. I have lost so many friends and relatives to AIDS . Remember, though, it's not a death sentence anymore.
My friends all died many years ago. Some didn't see 28. I lost a job because someone told the boss that my 27 year old friend died from AIDS.

Even through every bad thing - if you can still find something to make you happy ( check the Internet, there are groups that will support and help you! ) Even if you can see the sun in the morning, it's one more thing that someone else may not. Find happiness in every little thing.

This is also a reminder that EVERYONE who has sex needs protection. At least something, or no unsafe sex. It takes TWO of you to consent to it, so you can't blame the other person. Many times, they don't know , or have sero- converted.

It's also important to remember that of all of the AIDS cases WORLDWIDE , over 75% of the cases were Heterosexualy transmitted.

Everyone involved is at risk, everyone should be aware , awake, and of all things , loving. And pray for a cure!
Reply #67 Top
Phoenixboi,

Thankyou for sharing your life and your thoughts it was very moving. And in you writing about what happened in your experience I hope others read and understand what you are saying..and they will realize our mortal state and lack of invincibility before they have made a mistake that forces the concept upon them.

I am glad you are doing well as you can be and my wishes of health and happiness are heading your way!!:
Reply #68 Top
I lost a job because someone told the boss that my 27 year old friend died from AIDS.


Wow thats really bad! What was the outcome from that?

Many times, they don't know , or have sero- converted


And many times they do know and still do it.
everyone should be aware , awake, and of all things , loving


Loving I think is the cure to alot of things!

Thanks for your post liveletlive
Reply #69 Top
I am glad you are doing well as you can be and my wishes of health and happiness are heading your way!!:


Hey the Crusaders thanks for your post and thoughts! Im happy now I am out of hospital, that was a shock to me. Just need to get better now and be stronger again.

Reply #70 Top
I'm glad you are courageous to admit that you have aids ( or HIV? ) and you will not get any flak from my direction at all. You seem to be able to continue your life regardless, so that is good too.

HIV is a homosexuality disease. the only reason so-called hetrosexuals have it worldwide to a large degree, is because of the blacks in africa. Black men in Africa commit the sin of SODOMY with their wives and girlfriends. In other words, they have perverted anal sex.


Bible Thumper, you get aids or SID ( sexually transmitted disease ) by sharing fluids with partner by sex, regardless of which hole they decide to use. Virus is just a DNA with a protein jacket. How does it know it's transferred between straight person to another and not gays so it will disable itself magically? Sounds impossible to me.

Besides, there IS whites or any other race performing those "perverted" anal sex. Does you mean that AIDS checks the person's skin color AND that person's sexual preferences before infecting that person? Person is billion billion times bigger than AIDS particle. Hows does it even check skin color?

Im glad Marvin is posting here.
He is an example of the extreme to why this virus has caused so much stigmatism in society, why people living with HIV have mostly had to hide their status and why people like Ryan White (remember him?) had it so bad in the early days.


I agree. It's sad that people is trying to tack AIDS disease to that person's perceived sins.

Reply #71 Top
I agree. It's sad that people is trying to tack AIDS disease to that person's perceived sins.


I watched "Philladelphia" it certainly gave me a new perspective
Reply #72 Top
Hey XX thanks for reading and expressing your views. It's good to see people with a bit of sense posting here and understanding what it's about.
Reply #73 Top
I watched "Philladelphia"


That was an interesting movie. Thankfully things have moved on since then.
Reply #74 Top


HIV is a homosexuality disease. the only reason so-called hetrosexuals have it worldwide to a large degree, is because of the blacks in africa. Black men in Africa commit the sin of SODOMY with their wives and girlfriends. In other words, they have perverted anal sex.


Wow, if knowledge is power, what is the use of false knowledge?

AIDS is believed to have started in sub Saharan Africa, among Heterosexuals. Possibly by eating the tainted meat of monkeys infected with a virus.

The AIDS cases in the WORLD are overwhelmingly Heterosexually transmitted ( over 75% ). Sodomy has little to do with it.
The virus is easily passed from penis to vagina , and vice versa. Did you know that Sodomy in America, in most states , applies to anything but man on top , woman on bottom sex? Oral sex with a woman in many states is illegal as sodomy.

These laws may have been changed with the declaration of the unconstitutionality of sodomy laws ( as in : they were only enforced for Gay sex, and not for Heterosexual sex. )
Reply #75 Top
AIDS is believed to have started in sub Saharan Africa, among Heterosexuals. Possibly by eating the tainted meat of monkeys infected with a virus.


Yeah I remember reading something like that. Those monkeys had AIDS first, then we humans got it via eating "bush meat" from monkeys.